Patient resources for Factor XIII Deficiency
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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American Thrombosis and Hemostasis Network (ATHN)
General support · Based in the United States
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EuroBloodNet / ENROL Registry
General support · Based in Spain
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European Haemophilia Consortium (EHC)
General support · Based in Belgium
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Foundation for Women & Girls with Blood Disorders (FWGBD)
General support · Based in the United States
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Hemophilia Federation of America (HFA)
General support · Based in the United States
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NORD — National Organization for Rare Disorders
General support · Based in the United States
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MyHemophiliaTeam
General support · Peer support
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